Im in the disability field and honestly I feel like we need something and need it bad. Not institutions, at least not like they were, but I honestly wouldn’t be surprised to see some people in the disability community respond positively to this with the hopes that its different this time, lord know the people who like him don’t believe his words at face value. I can also tell you thers definitely is a not insignificant amount of people in the community who have a neutral to faborable feeling on Trump.
The key here I think is that during the pandemic, even before mask mandates, we started seeing services get cut, orgs defunded, and staff reduced. So much of the disability community right now is relying on support staff and self directed program funding, which is essentially the disbursement of medicare and medicaid funding to one individual, not necessary with a medical background, to help the person with the disability with their day to day stuff and goals stated in their Individual Service Plan. The flexibility is great but its just one person at a time, they don’t even get a budget to do things typically.
A lot of people with disabilities are missing the structure of actual organizations that has the resources to do more than what a one on one support worker can, and someone on Trumps team is either smart enough to know that, or quite lucky.
Nice, I also used to work in the disability field (ID/A). And you’re right, although at least in my state we haven’t had cuts, more so just a lack of sufficient new funding.
I will say that I don’t think many in the disability will support this, but some do seem ignorant of the past and the old realities of institutionalization.
And yeah, self-directing is a double edged sword. I’ve seen it done well and I’ve seen it abused by families just to get some extra money, while not really sufficiently meeting the needs of their family member with disabilities. I also think it’s nearly inescapable in the future, given the staffing shortages we already see in direct care and the aging boomer population that will require even more staffing.
Self directed seems to be the answer to budget problems, but there should be pooled resources that all support staff can tap into if we want to even keep the same level of service we had pre pandemic, and honestly the disability community still deserves more than that bar. Hopefully we get there.
Im in the disability field and honestly I feel like we need something and need it bad. Not institutions, at least not like they were, but I honestly wouldn’t be surprised to see some people in the disability community respond positively to this with the hopes that its different this time, lord know the people who like him don’t believe his words at face value. I can also tell you thers definitely is a not insignificant amount of people in the community who have a neutral to faborable feeling on Trump.
The key here I think is that during the pandemic, even before mask mandates, we started seeing services get cut, orgs defunded, and staff reduced. So much of the disability community right now is relying on support staff and self directed program funding, which is essentially the disbursement of medicare and medicaid funding to one individual, not necessary with a medical background, to help the person with the disability with their day to day stuff and goals stated in their Individual Service Plan. The flexibility is great but its just one person at a time, they don’t even get a budget to do things typically.
A lot of people with disabilities are missing the structure of actual organizations that has the resources to do more than what a one on one support worker can, and someone on Trumps team is either smart enough to know that, or quite lucky.
Nice, I also used to work in the disability field (ID/A). And you’re right, although at least in my state we haven’t had cuts, more so just a lack of sufficient new funding.
I will say that I don’t think many in the disability will support this, but some do seem ignorant of the past and the old realities of institutionalization.
And yeah, self-directing is a double edged sword. I’ve seen it done well and I’ve seen it abused by families just to get some extra money, while not really sufficiently meeting the needs of their family member with disabilities. I also think it’s nearly inescapable in the future, given the staffing shortages we already see in direct care and the aging boomer population that will require even more staffing.
Self directed seems to be the answer to budget problems, but there should be pooled resources that all support staff can tap into if we want to even keep the same level of service we had pre pandemic, and honestly the disability community still deserves more than that bar. Hopefully we get there.