• raspberriesareyummy@lemmy.world
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      24 hours ago

      That sounds quite different. Wording matters, especially in times of bot posts and clout posts.

      Also, no one signs up to be tested for a match with a specific person, not at those odds. So your new wording still doesn’t reflect how typisation (not sure about that word) is done.

      • SupraMario@lemmy.world
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        20 hours ago

        The fuck? Yes it does, I lost a close friend to leukemia, and a ton of us went in to see if we would match with him. I don’t know where you got your info from but you %100 can do this. It works the same damn way with organ donating as well.

          • SupraMario@lemmy.world
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            18 hours ago

            I don’t wish that shit even on people I don’t like, watching him go from a big happy guy who was 3 years from retirement to a skeleton in like 4 months was devastating. Adult leukemia is such a fucked up thing. He didn’t even know he had it until it was to late. Any time my wife and I, and his wife go out to our favorite Mexican restaurant, it’s like a nice little reminder he is with us still joking and eating the hottest salsa they make. I really miss him, but do remember the fun years we had with him. Really sucks he’s gone though.

            Get your blood tested on a regular people, it might save your life.

        • raspberriesareyummy@lemmy.world
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          12 hours ago

          I am sorry but you misunderstood the process. You do not check whether you match with a specific patient, but rather typisation is done to add potential donors to a larger database, from which hopefully a donor match is already available even before, because the chances for a match are so low that you can have a couple million people checked until you find a match. This is not blood groups.

          • SupraMario@lemmy.world
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            8 hours ago

            Not even close, we worked with his doc and all had HLA tests done to see if we were a match for him. They also did the larger registery match list as well, but saying we didn’t is bullshit.

            • raspberriesareyummy@lemmy.world
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              7 hours ago

              It seems the doc validated your feelings that you wanted to help your friend then, but also set you up for disappointment by not telling you the odds, and that you were much more likely to be a match for some complete stranger.

              • SupraMario@lemmy.world
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                7 hours ago

                I understand the odds, it’s why we all got registered and why he ended up dying. The fuck is wrong with you.

      • Seleni@lemmy.world
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        19 hours ago

        The hell you on about? People do that all the time.

        I’m part of a big group now that is in a pool doctors all over the US can check to see if they can find a match for people, because a friend of mine died from leukemia a long time ago. They couldn’t find a match for him, but maybe I can match with someone else someday.

        BTW, gonna shamelessly plug NMDP. They do good work.

        • raspberriesareyummy@lemmy.world
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          12 hours ago

          See you mentioned the important bit: we get checked to be in a large database pool for potential patients. Not to match with a specific friend, because as nice as that would be, it is very unlikely to ever happen.

          • Seleni@lemmy.world
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            4 hours ago

            So? There’s no harm in trying anyways. Why are you so against a small test on the off-chance it could save a friend’s life? It’s not as if you’re being asked to submit a whole kidney for testing or something.