i actually knew one of these powerusers in the early 2010s. he had leukemia, and i signed up to be a match to donate spinal marrow for him. i visited him in the hospital a bunch. he hasn’t acknowledged me since. that was a real bummer, but, i tend to see friends where they don’t exist so that might be on me.
i am a little bummed that i got permabanned just because i was so close to all of the reddit founders and early employees. i personally prevented alexis from getting arrested for trying to openly smoke weed on the street in pittsburgh when it was still the kind of thing that got you put in prison for a few years if your skin is darker than popcorn.
steve huffman in particular is a shitter and always has been. think of that kid you knew growing up who would make up that his dad worked at SEGA and that Goku was going to be in the next Sonic game — that’s spez, still, to this day. he is “mr. namedropper.” steve, genuinely, i do not care that you saw Beyoncé at the airport.
ETA: since people are being weird about phrasing, i signed up to be a match. his alias back then was Dacvac. i literally sat in bars and watched him mod /r/pics on an iPad. believe me or don’t, i’m just some schmoe online after all.
Idek what reddits target audience is anymore seems to be chronically online teen girls typically on snark/fanfic social media pages are becoming the majority, all they talk about is random drama and reality shows so they arent getting banned for saying stuff lol
It doesnt really matter either way but I’m inclined to believe you because you aren’t exactly going to get kudos for being close to reddit founders on the fediverse so this is more like a confession than a brag.
FWIW I enjoyed the context.
i had signed up to see if I am a match, which i would have donated if i had been selected. please show me where i mentioned actually donating bone marrow.
That sounds quite different. Wording matters, especially in times of bot posts and clout posts.
Also, no one signs up to be tested for a match with a specific person, not at those odds. So your new wording still doesn’t reflect how typisation (not sure about that word) is done.
The fuck? Yes it does, I lost a close friend to leukemia, and a ton of us went in to see if we would match with him. I don’t know where you got your info from but you %100 can do this. It works the same damn way with organ donating as well.
I don’t wish that shit even on people I don’t like, watching him go from a big happy guy who was 3 years from retirement to a skeleton in like 4 months was devastating. Adult leukemia is such a fucked up thing. He didn’t even know he had it until it was to late. Any time my wife and I, and his wife go out to our favorite Mexican restaurant, it’s like a nice little reminder he is with us still joking and eating the hottest salsa they make. I really miss him, but do remember the fun years we had with him. Really sucks he’s gone though.
Get your blood tested on a regular people, it might save your life.
I am sorry but you misunderstood the process. You do not check whether you match with a specific patient, but rather typisation is done to add potential donors to a larger database, from which hopefully a donor match is already available even before, because the chances for a match are so low that you can have a couple million people checked until you find a match. This is not blood groups.
Not even close, we worked with his doc and all had HLA tests done to see if we were a match for him. They also did the larger registery match list as well, but saying we didn’t is bullshit.
It seems the doc validated your feelings that you wanted to help your friend then, but also set you up for disappointment by not telling you the odds, and that you were much more likely to be a match for some complete stranger.
The hell you on about? People do that all the time.
I’m part of a big group now that is in a pool doctors all over the US can check to see if they can find a match for people, because a friend of mine died from leukemia a long time ago. They couldn’t find a match for him, but maybe I can match with someone else someday.
BTW, gonna shamelessly plug NMDP. They do good work.
See you mentioned the important bit: we get checked to be in a large database pool for potential patients. Not to match with a specific friend, because as nice as that would be, it is very unlikely to ever happen.
So? There’s no harm in trying anyways. Why are you so against a small test on the off-chance it could save a friend’s life? It’s not as if you’re being asked to submit a whole kidney for testing or something.
Yes, those people who know how bone marrow type matching works, and what the odds are. Also, OC has confirmed in their response that they didn’t get to the point of a donation. And found better - albeit not entirely correct - wording for the process they allegedly signed up for.
i actually knew one of these powerusers in the early 2010s. he had leukemia, and i signed up to be a match to donate spinal marrow for him. i visited him in the hospital a bunch. he hasn’t acknowledged me since. that was a real bummer, but, i tend to see friends where they don’t exist so that might be on me.
i am a little bummed that i got permabanned just because i was so close to all of the reddit founders and early employees. i personally prevented alexis from getting arrested for trying to openly smoke weed on the street in pittsburgh when it was still the kind of thing that got you put in prison for a few years if your skin is darker than popcorn.
steve huffman in particular is a shitter and always has been. think of that kid you knew growing up who would make up that his dad worked at SEGA and that Goku was going to be in the next Sonic game — that’s spez, still, to this day. he is “mr. namedropper.” steve, genuinely, i do not care that you saw Beyoncé at the airport.
ETA: since people are being weird about phrasing, i signed up to be a match. his alias back then was Dacvac. i literally sat in bars and watched him mod /r/pics on an iPad. believe me or don’t, i’m just some schmoe online after all.
Idek what reddits target audience is anymore seems to be chronically online teen girls typically on snark/fanfic social media pages are becoming the majority, all they talk about is random drama and reality shows so they arent getting banned for saying stuff lol
It doesnt really matter either way but I’m inclined to believe you because you aren’t exactly going to get kudos for being close to reddit founders on the fediverse so this is more like a confession than a brag. FWIW I enjoyed the context.
if you had actually donated bone marrow, you would know that’s not how this works.
i had signed up to see if I am a match, which i would have donated if i had been selected. please show me where i mentioned actually donating bone marrow.
That sounds quite different. Wording matters, especially in times of bot posts and clout posts.
Also, no one signs up to be tested for a match with a specific person, not at those odds. So your new wording still doesn’t reflect how typisation (not sure about that word) is done.
The fuck? Yes it does, I lost a close friend to leukemia, and a ton of us went in to see if we would match with him. I don’t know where you got your info from but you %100 can do this. It works the same damn way with organ donating as well.
That sounds like it must’ve been rough. I’m sorry for your loss.
I don’t wish that shit even on people I don’t like, watching him go from a big happy guy who was 3 years from retirement to a skeleton in like 4 months was devastating. Adult leukemia is such a fucked up thing. He didn’t even know he had it until it was to late. Any time my wife and I, and his wife go out to our favorite Mexican restaurant, it’s like a nice little reminder he is with us still joking and eating the hottest salsa they make. I really miss him, but do remember the fun years we had with him. Really sucks he’s gone though.
Get your blood tested on a regular people, it might save your life.
I am sorry but you misunderstood the process. You do not check whether you match with a specific patient, but rather typisation is done to add potential donors to a larger database, from which hopefully a donor match is already available even before, because the chances for a match are so low that you can have a couple million people checked until you find a match. This is not blood groups.
Not even close, we worked with his doc and all had HLA tests done to see if we were a match for him. They also did the larger registery match list as well, but saying we didn’t is bullshit.
It seems the doc validated your feelings that you wanted to help your friend then, but also set you up for disappointment by not telling you the odds, and that you were much more likely to be a match for some complete stranger.
I understand the odds, it’s why we all got registered and why he ended up dying. The fuck is wrong with you.
The hell you on about? People do that all the time.
I’m part of a big group now that is in a pool doctors all over the US can check to see if they can find a match for people, because a friend of mine died from leukemia a long time ago. They couldn’t find a match for him, but maybe I can match with someone else someday.
BTW, gonna shamelessly plug NMDP. They do good work.
See you mentioned the important bit: we get checked to be in a large database pool for potential patients. Not to match with a specific friend, because as nice as that would be, it is very unlikely to ever happen.
So? There’s no harm in trying anyways. Why are you so against a small test on the off-chance it could save a friend’s life? It’s not as if you’re being asked to submit a whole kidney for testing or something.
Jesus fucking christ, shut the fuck up.
your continued effort in this conversation is admirable and also an admission…
Interesting… Can anyone verify one way or another?
Who fucking cares?
Yes, those people who know how bone marrow type matching works, and what the odds are. Also, OC has confirmed in their response that they didn’t get to the point of a donation. And found better - albeit not entirely correct - wording for the process they allegedly signed up for.
Stop doubling down on stupid shit and admit that you fucked up. It’s not that hard.