**It’s more like things about neurotypicals: **
- They don’t have an iron will; actually, their willpower is often much weaker. But their frontal lobe rewards even little things such as clearing the dishwasher right when it is done with little dopamine shots, which they crave and and seek out, almost involuntarily.
- When they face a task, they don’t break it down into little steps with superior conscious intellect. They see the goal, e. g. a tidy kitchen, and their frontal lobe breaks it down and tells them what the next tiny step is to get a dopamine fix. They are not overwhelmed with all the little things that need to be done and what could go wrong, e. g. that wiping a surface could fail when it turns out that the cleaner is in the bathroom or there is still dishes on it.
I’m aware that I am a very messy person and I desperately wish I wasn’t. My executive dysfunction makes cleaning and keeping things clean so damn hard
No, you don’t have ADHD just because you get bored sometimes.
dont like that approach since mental illnesses are typically underdiagnosed rather than overdiagnosed. If someone says they have adhd they do until proven otherwise.
It’s undiagnosed because you don’t have it. Mental health is an extremely complex thing that only somebody with the right qualifications should comment on.
wow thats hostile, fuck you too buddy
I thought I was hostile until proven otherwise?
go fuck yourself you piece of shit,
a) I am officially diagnosed dont know why you assumed I wasnt
b) not everyone has equal access to healthcare and might have no choice other than to self-diagnose and medicate any range of illnesses
c) there are systemic issues like e.g. racism, sexism (sexism is double the issue in mental health than it is in physical) paired with the superiority complex of some doctors constantly leads to psychiatrists dismissing and downplaying their struggles and not diagnosing or writing prescriptions a patient needs.
but glad you keyboard warriors who never had to deal with this shit got it all figured out
“a) I am officially diagnosed dont know why you assumed I wasnt”
Do you need to be officially diagnosed? You’ve made it very clear you have the power of Google and YouTube on your side.
“b) not everyone has equal access to healthcare and might have no choice other than to self-diagnose and medicate any range of illnesses”
If you could diagnose yourself you wouldn’t need any of those things.
“c) there are systemic issues like e.g. racism, sexism (sexism is double the issue in mental health than it is in physical) paired with the superiority complex of some doctors constantly leads to psychiatrists dismissing and downplaying their struggles and not diagnosing or writing prescriptions a patient needs.”
Oh, so now I see. You don’t even need doctors because they’re racist or something because they didn’t give you the diagnosis Google said you had.
Do you need to be officially diagnosed?
Helps with access to medication
If you could diagnose yourself you wouldn’t need any of those things.
In a perfect world everyone would have access to what they need, until then a lot of people will have to make do with what they got and if its not a licensed doctor then google will have to do.
Oh, so now I see. You don’t even need doctors because they’re racist or something because they didn’t give you the diagnosis Google said you had.
They did. I am officially diagnosed by a licensed psychiatrist with ADD and I get prescription medication for it. Still don’t know why you assume I am not. Yet still there a lot of doctors which are racist, sexist, transphobic and mis- or underdiagnose because of their biases. A white wealthy male doctor might have difficulty relating to a black poor woman and not understand the issue they’re facing. On top of systemic racism, for instance it’s well documented that, especially in psychiatry, a lot of the research is centered around USian college students, because those are the easiest test subjects to find, which makes the research rather biased.
And there are a lot of people that don’t even get to see a doctor due to poor health coverage who have to make do with what they find online.
What an absolute cold-blooded dismissal of other people life-altering struggles.
just stumbled across this video and remembered out “conversation”
We have excess focus just no control over its direction.
It’s really tiring to just exist inside your own head.
I’ve described it before as a box filled with a bunch of bouncy balls just bouncing off on every direction, off the walls, ceiling and floor, all the time. Every one of those balls is a thought, it’s really hard to hold onto just one, it’s hard to keep one once you’ve caught it.
When I’m resting usually I just put in some youtube video/TV show/audio book and play some mindless game for a while. On the outside it looks like it just played solitaire for 3 hours straight, but on the inside I’m just trying to follow one line of thought while keeping the rest of my brain occupied and quiet for a second.
the problems sound similar to “what everyone has” but they arent the same
Yes everyone struggles motivating themselves to do chores but it’s not the same when you have adhd.
Yes everyone has trouble concentrating during a boring lecture/lesson but its not the same when you have adhd.
Yes everyone has the urge to buy stuff they don’t need, but its not the same when you have adhd.
Yeah it’s always „why don’t you just…“ or „why can’t you „
yeah there are only two reasons why someone doesn’t do something and it’s because they can’t or the don’t wanna. If they want to do something but don’t it’s because they can’t and some pedestrian advice like “Just think how much nicer it will feel after you’re done” is not gonna help.
so it’s those but more of them
not necessarily more, but more intense. Like it’s borderline physically painful sometimes to force myself to do something. It feels like I’m being very cruel to myself for no good reason, its just a dishwasher after all
people who have never been depressed tend to think that depression is just laziness
YoU jUsT nEeD sOmE fReSh AiR
It’s those but so bad it’s a disability. Like how just because most people don’t hear something from time to time doesn’t mean they’re all hard of hearing
How fucking hard it is to remember daily and recurring tasks. Taking meds, brushing teeth, checking email, cleaning up, cooking, laundry, on top of stuff related to work.
Another one is that we are blind. Unless I expect to see it, I cannot see it. I literally dont see clutter. Only when I force myself to think about what I’m staring at do I realize there is a bunch of crap on a table. Its really easy for my room to get messy because of this. Because it hardly exists for me.
Unless I expect to see it, I cannot see it.
I don’t know if it’s a gift or a curse, but around my house, I’m the only one who can find anything - but it’s not because I scan the room and see it, but because at some point in the past, I happened to notice, and I just remember where nearly everything is, whether I want to or not. I guess it’s my coping mechanism.
Living on my own I was really good about any mess I made in an instant being dealt with immediately. Dishes would not pile up, etc. Any problem with a longer accumulation time might as well be there forever though, dust bunnies can have eternal lifespans.
I didn’t find it so bad, but a switch to living with someone who just does occasional cleaning can throw your living space into chaos. The tiny psychological difference between “making a new mess” and “contributing to an existing mess” has way too much impact on what tasks will get addressed, and it’s difficult as all hell to break free from that.
We I have the fun combination with (undiagnosed) autism and t Which one had primary control at any time is a scrap shoot.
Even medicated I can not see the clutter… Until it’s all I can see and I start AuDHD cleaning.
Hey, it’s me! Have you tried one of those weekly medicine pill dividers? I did. I think I filled it once, then went back to my daily routine of forgetting my meds. ADHD fucking blows.
Anxiety over missing my meds keeps me (mostly) on track, I do however forget to request refills until the last bloody moment though, love how the process for ADHD treatment is so anti ADHD…
Yep. Same thing happened with me.
Lord Almighty, I am not lazy.
While yes, it looks like I’m sitting there on my phone, my functional part is screaming at me. Get up. Go do the thing. Do your work. You wanna get fired? Get up. Get the fuck up… As I click on another meme or post or video.
It should really be called Intention Deficit Disorder.
My phone has my undivided attention, there is no deficit here.
Phones are shitty tablets, and tablets are really really shitty computers.
Phones are definitely easier to take with you though. But why would I leave the basement unless I had something to do? And when you have something to do, you can’t use your phone. (IMO)
just riffing off the op. Phones are the worst possible way to do anything that isn’t a phone call.
Are you me? Or am I you? The crazy thing is that when I work, I wooork. Like 12 hours without peeing, drinking water, eating, or taking any breaks.
When the iron is hot, the blacksmith is swinging. The water and peeing thing is probably something I would work on.
Have you tried bribing yourself with Kool aid or tea or something that will get you to drink water? Maybe a mini fridge next to the desk so you don’t have to leave the desk?
Hard pass on the piss jug idea. You can make it to the bathroom, I believe in you. Terrible habit. I’ve known some who travel that dark path. That’s why I live alone now.
I understand that this may come across as flippant and possibly condescending, so apologies in advance, but I mean it as a genuine question.
What would it take to break the… inertia?
I imagine you’d move if your chair caught fire, so there must be some line. How low can the bar be set?
To be born with another brain
I imagine you’d move if your chair caught fire
i’d sit up, try finishing the comment I’m writing, realize my pants are on fire, extinguish them, and then finish the comment, and then look at the fire
And be angry at the fire for interrupting you? And forget what the comment was about and just send it, hoping the response made sense but it doesn’t matter anyway because you forgot what the comment you were replying to is about and what the post was about and hey let’s open another app?
Meth. Anything less will only result in eventual and catastrophic failure. Source: I have ADHD and have tried everything else, several times over.
You mean Methylphenidate? Because people when understand a different thing when you say meth…
That or Methamphetamine mainly, most likely
My understanding is that stimulants alleviates ADHD symptoms. That meth is a type of stimulant. And that specialized ADHD meds are based off of meth (according to my nurse mom and sister).
But also, I am being intentionally hyperbolic for the purposes of comedy.
deleted by creator
But if you know where to get it pure or mostly pure
Albuquerque?
Winnipeg
Depends. Are we also depressed? Is there actual anxiety tied in with that flippant apparent physical lethargy? How hot is this fire?
If you want us to do something with some consistency make us feel obligated or change it enough to keep it interesting.
Neuroscience answer: Dopamine is responsible for (among other things) motivation and the feeling of reward when you do something. People with ADHD have chronically low dopamine levels because they have more dopamine transporters than most people do in their brains, so their brains burn through it quickly.
In practice, people who are unmedicated tend to do whatever they can to try and get a little more dopamine to get them through the day. It’s why smoking, risk taking, illicit drug use, gambling addiction, etc are also correlated with ADHD: all those things give you a dopamine boost.
So when someone is sitting there scrolling through memes on the phone, they’re hunting for the dopamine. The dopamine is almost never at The Task. It’s incredibly frustrating to understand all that and still not really be able to do anything about it until it escalates into an emergency, at which point you don’t really need dopamine to deal with it anymore, now that you have adrenaline. But that’s obviously an unsustainable way to do things on a regular basis.
it escalates into an emergency, at which point you don’t really need dopamine to deal with it anymore, now that you have adrenaline.
Oh, that’s why that happens
You do you, but if getting yelled at worked, things wouldn’t be so fucking shit in my life.
There will be pleanty of people yelling at you. Previously, and in the future. They do not need your help.
Peace.
To add to this.
Just because i failed to act on the stuff that needs doing doesn’t mean i had it easy or that am not exhausted.
Usually the reflective awareness of my stuck state drains me way more then if i would you just be able to get up and do it.
Everything, but mostly that it gets its name based on what annoys others instead of what bothers us. Attention problems and Hiperactivity are just two tiny parts of ADHD. There are other much more significant symptoms
In general the disorder is related to not properly processing neurotransmitters so everything that is “managed” by neurotransmitters can be out of whack. And some folks seem to have more problems with one kind of neurotransmitters than others.
Neurotransmitters are things like Dopamine, Serotonin, Endorfine, Noradrenalin. Example of stuff that are managed by them: Movement, control of the body, stress, sleep, attention, memory, learning, inhibition, joy, pain relief.
So, just by that you can probably imagine how broad the effects of ADHD might be.
We still don’t know any way to treat the root cause effectively (neurotransmitters being “killed”). The only thing that helps, is forcing the body to generate more of those neurotransmitters, hoping that it’ll process more of them that way. That works even with different stuff. If we generate more Dopamine, the body ends up processing more of the Serotonin it already produces too. That’s why stimulants work so well at regulating us - it floods our brain with artificial stuff that end up “shielding” the natural stuff to let them do their job too.
That is also why stimulants can sometimes make us more relaxed or even sleepy - it’s not that the stimulant itself causes that, but it let’s the body finally process everything properly so it can understand that it is supposed to be sleepy.
For someone without ADHD where the neurotransmitters are processed properly, stimulants will do nothing more than stimulate.
So look, I am not trying to talk down to you or make you feel inferior. The reason I use words with WAY too many syllables tucked into precisely worded sentence structures is because my fucking brain decided it didn’t want to remember the normal damn way of saying it.
Also, our brains glitch. As in it literally feels like some wires crossed. Due to this some situations/days/hours can be torture. Please be kind.
Have you ever considered not paying attention to what people say back?
If it makes you feel better, you can pretend they said good things about what you said.
Have you ever considered not paying attention to what people say back?
I have never considered doing that at all. It happens naturally in the middle of conversations.
Yeah. I don’t actually remember anything they might have said though that reminds me: Do you have a good spaghetti recipe? Cause I’m somehow seeing a correlation between people being jerks and spaghetti right now.
Don’t worry, everyone else. We will actually return to the original topic in about 15 minutes.
Lasagna dreams, spaghetti reality.
When there are no more spoons, you need to just go to bed.
What? I wash and reuse cutlery indefinitely
Not those spoons, spoons.
I know those but how would they ever run out?
I only have so many spoons, and the tasks are unending…
Perhaps this is some sort of internalised ableism but I used to have this internal dialogue where I’d reflect on how difficult it was to do “boring” things and a straw man NT person would sarcastically imply that “it must be nice” to have an excuse to get out of “boring” tasks.
Um, fucking no. If you think about it for like two seconds, you realise how much of being a happy, independent and healthy adult relies on being able to complete tasks that aren’t immediately captivating. Those tasks still need doing, I don’t want someone else to do them for me. You’re left with either waiting on when the ‘inspiration’ strikes you, having to improvise some game or arbitrary reward structure just to clean two dishes or you just rawdog your way through the task and you feel every second of the boredom and come out the other side feeling worse than when you started because no satisfaction from completing the task can pay-back the effort you put into completing it.
That’s why ADHD adults burn-out. Without medication, every day you end with a ‘motivation deficit’ where no satisfaction from completing tasks can cover the costs of the determination and focus one spent to start those tasks. Eventually you just ‘default’ and you can’t do anything any more.
Stimulants to me feel like a small loan on every task. It’s a fine balance but they actually let me come out of tasks semi-regularly with more energy/motivation than I started. And when you have a surplus, productivity begets productivity.
Hello me, that was very succinct. I don’t get how so often they say “oh, everyone dislikes doing x, you just do it” ah, see that’s the problem right there
What is that medication ? you just described my daily experience, I wonder if maybe I’m suffering from the same exact thing. I knew everybody didn’t struggle like I do
Elvanse (Vyvanse in some parts of the world).
That it is not some magic fucking “gift”. The hyper focus isn’t a super power. It sucks, and gets in the way in all the wrong places, bills, school, career. I would trade places with anyone who doesn’t have it becuase it plain fucking sucks.
Hyper focus is a real problem for me. I don’t even realize I’m hungry or that my bladder is full until I’m feeling nauseous or light headed. What feels like 15 minutes is actually hours.
At the same time, if I don’t complete a project from start to finish in one sitting, it’s nearly impossible to restart.
I don’t get basic things done like laundry or remembering to make appointments because I’m stuck on one task. Sometimes I’m afraid to do things I love because I can’t just do it for 20 minutes. Especially video games. I want to relax after work and play but I know I can’t let myself or I might not eat that evening.
If you do get into hyperfocus on something you need to like work or a project or whatever, someone or something breaking you out of it is incredibly frustrating. Like not because what ever the interruption is isn’t important, but because hyperfocus is difficult to get into on something important, so hard to switch focus from, and there is an almost painful obsessive need to have completed where doing.
Edit: accidentally hut submit too soon… Typos
My 10 year old has ADHD, and threads like this have helped my understanding. Thanks for sharing your experiences.
What does my daughter need from me, her Dad? She has an understanding pediatrician and a good therapist. My wife and I have given her freedom to choose how she organizes her day within reason. She has never done poorly in school and has impressive interest in art and science. We’ve been fortunate to have flexible school teachers most years. The kid has developed coping skills of her own, but I can still tell that brushing her teeth or getting in the shower or getting started on her homework are monumental struggles every. single. time. I don’t doubt that she will be fine in the long term, but I would love any advice on how to help day to day life to be a little less exhausting for her while still helping her learn how to function independently.
What are things people have said or done for you that helped you feel seen and loved?
It’s very different for everybody, but here are things that would apply to SOME:
- She might reject “must do now” orders. Instead of saying “Start your homework now and do it until it is finished”, change both the start and duration to something manageable. “Hey, you are home! Just relax for 20 minutes, and 5 minutes before dinner starts, get everything for your homework ready on your desk.” Starting the actual homework is far less overwhelming, then. And instead of “… until it’s done”, make a deal like: “You only have to do 12 minutes of the task, but with a challenge: 12 minutes of maximum efficiency and performance!”. When it is about cleaning the room, also provide a clear unit of work, such as a time constraint (with stopwatch, never wing it!), or toys only, dirty laundry only, a well-defined section only.
- She might already be the willpower equivalent of a body builder, because she has to do with force of will what other people have done for them, be it the frontal lobe breaking down a task, or handing out dopamine rewards that she does not get. When she starts a task such as homework, she has to face the whole tree of little steps and what could go wrong: Find the backpack, alternative plan for when the math book is not in it, the notebook has half a page left, so she will have to stop in the middle to find the new one (where is it?), …
- When she is on a productive obsession, such as reading, an instrument, an area of knowledge, let it run its course undisturbed. There might be phases in which everything feels like too much, so these phases are invaluable. Much of her skillset might come from intense obsessions rather than continuous habits.
- Focus on finding a starting point to an overwhelming task, such as point 1: Get the homework ready and in place, then do something else. It might trigger a thing where she WANTS to start immediately, and otherwise, the start will be so much easier.
- Allow her to skip homework when it is too much and write a note for the teacher. E. g. got back home sick, doctor visit on the afternoon, exhausted and unable to finish homework, but did a start. When necessary.
Yeah, when my chore ask is, just do 10% of it, then take a break, and it’s really not an argument then.
Thank you. Suggesting to just do the prep for homework is genius.
Helping her develop coping skills. These cannot come from you, but from her. You just help maintain and adjust home life to them. They can look like…problem: never being able to find what she is looking for. Solution: things get one place they are allowed to go and that is where it lives (eg: shoes by the door, pencil/pen in a drawer or bucket, keys on a keyring by the door, tools in a toolbox). Hell, I’ve found my keys in the fridge before. I can’t tell you how much it drives me nuts not being able to find my tools and then my kids used them and left them in their rooms.
Sometimes these coping mechanisms are socially-based. Sitting down at the same time in a designated spot everyday to do homework with someone else until it’s done (enough for the day). That used to be me for my kids, now it’s a friend who is also ADHD whom they worked out a method that works for both of them. Some of the things seem silly, but matter greatly, like the environment that something is done in being very important in helping guide that focus. Again, let her guide that, because it varies by person. She may want something on in the background like music or a show. Let that happen, but it shouldn’t be a visual distraction or need any sort of constant maintenance to continue (eg: a playlist, not being able to see the screen, but can hear a familiar show playing, not one that she hasn’t seen before). Ask her and let her guide it, but help ensure that the visual stimulus or the need to keep queuing up a new song isn’t there.
Elementary and maybe even middle school tends to be easier for ADHD kids, then they hit a wall in middle/high school when the class structure changes. Meet with the school counselor and (US specific) set up a 504 plan asap (accomodations outside school policy). This can be the ability to take breaks, listen to music in class, being able to take a test in a different environment (such as without other kids in a library or office), have more time for test-taking. This is something she will also need to decide.
You may be hesitant about stimulants and other ADHD meds, but for many ADHD people, they are life-changing. It feels like getting your life back after it was taken away, so they are worth exploring. They aren’t all limited to stimulants and can be safer for younger children such as guanfacine/intuniv. Even with stimulants such as methylphenidate derivatives, these meds can help regulate many things other than just “attention”. They can help with maintaining sleep schedules and often are found to be more effective at regulating mood than typical depression meds like SSRIs.
The struggles to fit into a world not built for ADHD people can be a major contributor to depression. It makes me think of myself and others as addicts searching for their next fix of dopamine at times. If you don’t help regulate this, she WILL develop other methods to do this: alternative stimulants such as caffeine and nicotine or escape methods such as social media, video games, tv, fiction stories. When she hits middle school, you’ve lost the battle and she will have access to these things through other kids. It’s part of why you see some ADHD people turn to cigarettes/vapes or drinking caffeine from the beginning of the day until they go to bed. These low levels of stimulants help them regulate everything going on in their head and function in a world not built to accommodate them. When we can’t do that, many of us turn to methods to escape reality or get small rewards-based dopamine fixes. You will not be able to eliminate all of these alternatives that can become pitfalls and unhealthy, but you can help her get meds that fill the same need so those other things don’t become actual problems and can be consumed in a healthy way.
There is little you can probably say to help her besides just listening to her, maybe show her this post to start? There is a lot you can do to hurt her and her image of herself that will seem innocuous to you or might be said in frustration. I suggest reading through what others have said about what they are told. The most recent thing for me was having a boss say he believed ADHD was over diagnosed and overhyped these days when I was trying to let him know I was ADHD and how he could use that to the benefit of both of us. This was coming from someone with a child on the autism spectrum, so not something I expected. My mother unintentionally hurt me by trying to encourage me when I was young, saying that I could do and accomplish anything I wanted. This was kind, but when reality hits and I struggle to do seemingly simple things or live up to her great expectations that were not real and only built up in my mind through my youth, it leaves me with a deep sense of shame.
The best thing you can do is listen to her and let her know you accept her for who she is and what she chooses to do with her life and that you will love her regardless of anything she does or does not accomplish in life. Let her know that your love is not tied to her worth as society (school, work, movies, fiction) defines it and that those societal expectations are not realistic to human existence. When she comes to you to show-off something she is proud of her work on, let her know you are proud of her for that work too.
Kids with ADHD often have days and weeks and months and years in which almost every interaction with a parent or teacher is mostly negative. It doesn’t take long for this conditioning to make kids feel bad about themselves–e.g., see themselves as stupid and lazy–and feel bad about the parents and teachers. They often become secretive or otherwise avoid the people they’ve had thousands of bad experiences with.
If there’s any way to shift that balance, it will be powerful for your daughter and for your relationship with her later. Sometimes this means just letting go of certain things. Sometimes it means letting her get away with stuff. If she has siblings, it probably means looking like you’re treating your kids unfairly. Sometimes it might mean reaching out with love and kindness when there seems to be no chance that will be received well. You can potentially be one of the best things in her life, but the path of least resistance–and the path that “normal” parenting leads to–is a world where you are an agent of unpleasantness or punishment for her more often than of happiness and comfort.
As she grows up she will learn lots of things adults need to know; some quickly, some very slowly. She’ll need help at a lot of points, and if you can be a person she asks for help, her life will be better. When she’s 20 or 30 she’ll be independent and living a life, no matter what your parenting style was. At that point, the relationship she has with you depends a lot on her accumulated memory and gut-level conditioning from years of being around you.
I’m choking up as I write this because I have a daughter and I know I’m not a perfect dad. I want very much to have a good relationship with her as she grows up, and I know I don’t always make that easy. It’s a huge challenge. I say this because what I wrote sounds really preachy; I’m preaching to myself as much as to anyone else.
The hardest years are still ahead of you. I have ADHD and was undiagnosed until junior year of high school. I was doing amazing in school until things started getting hard enough that I couldn’t just rely on my current knowledge and had to actually study. Make sure she develops strong study/organizational habits now before she gets into high school, because that’s when things can really start to fall apart. It sounds like you are already doing a great job, and more than my parents did at that age, so you might have far less of an issue.
I’ve never had any support from others into managing my adhd so I can’t say what helps for sure, but I can shed some light into it so you can try to find a way to help.
. 1. It’s very hard for us to associate work and reward unless the reward is immediate. If you tell your kid “if you clean your room we can do X this weekend”, they’ll want to clean their room, but their “body” will still see it as a pointless chore.
. 2. “out of sight, out of mind”. Imagine that people’s brains are like an internet browser, with different stuff being in different tabs. For a NT person, there are a few tabs open with the stuff that they are doing that day and anything that is not relevant at the moment is saved on bookmarks to be retrieved at another time. The active tab is the thoughts that are currently going on in the head. For someone with ADHD, this browser would not have bookmarks and in turn it keeps the tabs open forever. As an effect of that, we can no longer manually switch between tabs. Once we switch to a different tab, the old one is lost and the only way to access it again is “clicking on a link to the same page”. But we are so used to switching tabs all the time that everything loads instantly already.
Let me try to give practical examples of what I mean with this:
Say you live on the second floor of a building and you need to take the stairs to get home. Going up you notice the first step of the stairs is broken and need repairs. You make a note of it and continues going up. Thats a thought for the “stairs” tab that is currently active. You go into your house and notice your pet’s food bowl. The browser now switches to the “feed pet” tab, which makes you realize you haven’t done it that day yet. Anything about the stairs is now completely wiped from your head, as if you had never even thought about it. You go feed your pet and on the way you notice a pile of dirty clothes to wash. Your brain now switches to laundry tab and you forget anything about the pet. You start the laundry and go back to your living room, see the pet’s food bowl again and goes “oh yeah I need to feed it” - this puts the pet tab back into your head. This time you carry the bowl with you so it keeps that tab active and you can complete the task. At night you’re watching some show, commercial break hits and an ad shows someone going up some stairs so you go “fuck, the stairs” but it’s night now and you can’t do anything about it. Your wife comes in and asks what are you watching. You have no idea because you’re on the “stairs” tab now. Commercial break ends, you see one character and that puts you back on the show tab, so you instantly remember the name and the whole plot.
If you expect someone with ADHD to do something, there’s only a few ways they’ll actually do it:
- there’s immediate consequences for doing/not doing it.
- there’s something constantly reminding them they need to do it.
- they dedicate their whole day into not forgetting to do it.
That third one is what we’ve come to call “waiting mode”. It’s what we do when we have an appointment at a specific time of the day for example. We hold on to that “tab” so hard to ensure we don’t lose it, that we basically become unable to do anything else until that is done. When we’re in waiting mode, simply looking at a clock will switch the active tab back to that appointment and make us lose track of whatever else we were trying to do. Everybody eventually develops this skill (sacrificing their whole day so they don’t forget their appointment) after missing too many things - so don’t expect your kid to be able to remember to do things on their own.
. 3. Living like this is tiring. Feeling like we have no control over where our own thoughts go. It’s like there are bees inside our head constantly buzzing buzzing. And then at one point you find something that makes the bees sleep. Playing videogames, drawing, solving some logic puzzles - what it is changes for everyone, but your kid will find hobbies that will make the buzzing stop. Such a hobby will give great relief, on top of anything else a hobby gives us. But when the bees are sleeping, we are “frozen” into that tab - if left to our own devices we’ll often forget to eat, sleep and everything else. Initially you’ll have to ensure your kid doesn’t get stuck on their hobby alone. Do remember though that everytime you take your kid off of their hobby, you’re waking up the bees in their head. You may notice that their immediate reaction to it might be to be very annoyed. You’ll both have to learn to manage it, but what I recommend is trying to keep interruptions to a minimum. If the kid needs to do things, try to get them to do them all at once so they can have more ininterrupted time too. If you wake the bees every 10 minutes, it can be infuriating.
. 4. Any relief that we get from doing rewarding things or from “putting the bees to sleep” are also contained to that “tab”. If your kid spends a whole afternoon resting they’ll feel rested during that afternoon, but as soon as you ask them to do some chore, it’s as if they hadn’t rested at all. Imagine like you had a clone of yourself and you have your clone do everything you don’t like doing. It’s kinda like that, but instead of being two different beings, your kid is switching between being the one that only rests and the one that only works. Doing the same chores every day feels more and more annoying every time we do it.
. 5. Kinda repeating one of my previous posts, but anything that is stashed away somewhere will eventually be forgotten. Things that are kept in plain sight will naturally see more use. Things may end up being suddenly forgotten too. For example if the kid is learning to play guitar and they practice every day for months, then one day they don’t and it goes on for six weeks before they even remember they were learning the guitar, at which point the habit is completely broken. Habits in general are harder to form and once formed, we still need to put effort into keeping it or it may just vanish.
I could still write a lot more, but I should get going now, writing this made the bees sleep and I forgot to go to work.
Waking up the bees is exactly what happens. If any other advice comes to mind this is gold.
What are things people have said or done for you that helped you feel seen and loved?
So I can’t give much on the coping mechanisms - she’ll have to figure her own flavor of ADHD and coping mechanisms out, likely by trial and error.
But things that make me feel seen and loved / things that made me feel small and worthless, I can talk about.
My parents actually knew I had ADHD - turns out I got diagnosed as a kid and they did fuck all about it and never mentioned it - and figured the best thing for me was “tough love”. I was routinely punished for things they made very clear to me as an adult that they knew were symptoms, and I was acutely aware of just how inconvenient and difficult I was for everyone else in my life. They figured if they let me “deal with the consequences of my own actions”, I’d “learn”, but all that did was make me feel miserable, worthless, alone, and anxious.
My husband couldn’t be more different about it. ADHD is insanely frustrating - for no one more acutely than the sufferer. You spend most of your life actively fighting yourself about everything from brushing your teeth to doing your own hobbies. He is incredible about not making it about him, and making it really, REALLY clear that he doesn’t love me less because of the ADHD and he couldn’t possibly love me more without it. He helps me constantly and without fanfare - I joke he can read my mind because often by the time I get “now where did I put my–” out of my mouth he is placing my missing phone/keys/headphones/water bottle into my hand (it turns out phones don’t go on top of the laundry hamper and your wife in the other room will likely want that soon).
While it is clear that my ADHD is our common enemy, it isn’t because he feels like it picks fights with him - it is because he chooses to fight it alongside me because it makes me miserable and therefore has chosen violence. He is willing to sit quietly next to me when I need a little more structure, brain storm strategies and priorities for busy weekends, listen to me talk about things he doesn’t understand while I sort out my thoughts, never makes me the butt of jokes, and has some incredible problem solving skills when all I remember is that I put something “away” and it isn’t actually “AWAY-away” (recent example - I lost my headphones for days, and I could remember I had been sitting at my desk, specifically rolled them up, and put them “away” in that desk, but they weren’t there. Or in any other drawer, or under the desk, or my nightstand drawer, or my backpack, or any pockets, or purse – he walked to my desk, turned 180 degrees and a few feet back to the infrequently used sewing table behind me, opened the “equivalent” drawer, and behold!! Headphones. “I knew it!! It’s the same wood as your desk!!” Besides my ADHD apparently, who thinks like that??).
Some of this is implicit, a lot of it is explicit - he reminds me frequently that he’s not upset with me, asks how he can help, and jumps in immediately. For me, the most important part of all of it is his attitude - he doesn’t make a big deal out of it, he stays positive, he’s reassuring, he’s involved, and he’s never resentful. For me, we are confident that short of some medical breakthrough I will never really be as functional or happy independently as I can be with someone else providing external support, structure, and executive function, but he’s verbally and cheerfully told me he’s ready to be my Tactical Support Husband for the rest of my life.
I make his favorite desserts a lot.
Feeling this very hard. It took me a few decades to find a partner like that. Very happy you have one.
That they have it